Well It's about that time for a yearly update. I unfortunately have no travel stories this time around, just a little life update. I've been on my own for almost 3 years and let me tell you it's NO fun. I still have travel plans but for now propane was a little more important. I've pretty much exhausted my immediate savings just to live even though I am the self -proclamed master of using the system before it uses you. I have some good news though :) Life has sent me a curve ball and I have decided to pursue getting a degree in sience. Don't ask me how I'm gonna do it though, lots of study groups I guess !:) Let me tell you one thing that I am sure is burning in your head right now, I feel really strongly about wind power and think it holds the key to our energy crisis. SO how is a TBI patient with 3-5 Gran Mal seizures a week ever gonna swing living independently and pursue a degree? Well I guess that will be on next year's update. Thanks for checking back in on me, tbichat has carried me through alot of nights I thought about calling it quits. Peace out and be seizure free!
Just keeping everyone up to speed with trials and tribulations of not letting Epilepsy from a TBI get you tied down, off I went once again to the west with a real winner of a plan this time:) Get off the plane and start walking. What a plan. I landed in Sac and thought the city was a hell of a lot closer (things on a map in CA have a tendency to be a lot further than what they look on paper) I keep saying I'll retire my pack but I keep on hiking and hitching. Picked up on the highway going north, it saved me some walking but I still felt relieved at the hot-springs that night and my back was saying "thanks" Meds still right on schedule and seizures were alien at this point, I'll jump down to the point of my trip I want to get to... Camping, Living, and a little bit of a slap in the face. It was all cool till the plane ride home, 3 seizures on the plane. NOT cool, but it's the way it goes. I told the attendants when we boarded so they knew, but were still a a bit scared. I guess the lesson of this trip is...Let folks know of your problem in advance and things will likely go a smoother at 30,000 feet at a time when people are already a little"edgy" about flying.
Well, back on the road again! I hope these updates continue to inspire all of the folks living with Epilepsy. I headed out to northern California with one real plan, to eventually meet up with my friend for her birthday. I landed out in San Fran and had a few rough days. As you all know by now Gran Mal seizures are no fun :( But, I get through them and keep moving.North through the redwoods and northern California then circle back. The world is out there and waiting for me, and I'm coming:). My words of wisdom this time(if I have any) are to encourage your nuerologist to keep a personal relationship with you and your progress and always keep hope in hand---Peace till next time.
Just dropping a line to keep everyone up to speed. I've been out to the west coast again this year,enjoying the northern California atmosphere. Refusing to let my TBI make me a couch potato. I expect my nuerologist to move me offf Ativan, I am simply becoming more and more used to it. The year has gone rather smoothly as of august with only 40(+/-) Gran Mals. Thanks again for all the support this room has given me, and all the new folks remember this battle we are fighting can't be done in a day, but you have lots of reinforcements for the long battle ahead of you.
Still travelling, 8700 miles with only 5 Gran-Mals, The Road trip went well. I hope this is keeping on re-assuring anyone that all is possible depite my Epilepsy and TBI. I have relearned and retold myself again snd again that I won't be kept down. Educate ureself and never give up. You don't have to be glued to a TV or a computer the rest of your life. The world is at your own hands, grasp it and show it who's the boss, I hope I can continue to develop the part (frontal lobe) that was damaged, there is alot of brain tissue in there you just gotta find it. Peace, Heath
I just returned from hitching, hiking, hostelling and using the Washington, Oregon, California coast. I love the attitude of the northwest, a bit soggy in winter but worth the trip.I was prepared for the worst but only got the semi-bad. The characters I meant were worth it all and the coast was incredible. LOTS of time to think. I wish I could have went back up to Alaska while I was there. Only a few more hikes and I'll retire my pack to my younger brother Brandy. Peace till then. and be seizure-free.:)
I guess I'd just drop a line and let everyone know I'm still travelling and the children are getting bigger.
I came home from work early on the day this all started. I had an extremely high fever,and despite thinking this was no more than the "flu", My body had it's first of what became 1000's now of Gran-Mal seizures. I was 27 years old, and had the world had suddenly become a stranger to me, after awakening from a month long barbituate-induced coma to stop Status Elepticus, I had no memory of my children( 3 beautful healthy ones), and a wife that has since become a stranger. I enjoy writing,travel, and honest conversation.Please don't pity me for I have so much more to give. Write Anytime, heath
Email Heath
View Guestbook Sign Guestbook Visit My Message Board
Visit My Calendar
owned by Heath Strock. [Join Us-Next-List Sites] |